Raina would love to have you on her team!

Want to join the amazing friends, families, fans and other supporters in Raina's tribe?

We'd love to have you.

Interested in supporting the researchers who are pushing forward every day towards an effective treatment and an ultimate cure for this horrible disease? We are currently working on a few different fundraising campaigns, and if you click the button above we will be sure to keep you posted.

But please, don't wait until then to support FOP research. There are already some great options - see below.

Please donate here to support critical research and progress for an effective treatment and cure for FOP. they are getting so close. 

You can also visit The Sienna Foundation and read about how critical your donation is for the cause. Please check out the video below from our friends at Sienna's Flower Garden:


Thank you so much for your love, your time and your support!

Raina is (AS ALWAYS) sending the good vibes right back at you!

Where there's hope, there's life.
It fills us with fresh courage and makes us strong again.